While most people have heard of the Alzheimer’s Association, did you know that there are other non-profits that focus on supporting patients and families struggling with an irreversible dementia diagnosis. Whether you are an Employee Assistance Professional or just care about someone who is showing signs of cognitive problems, here is a handy list of resources you can refer to for help:
www.alz.org offers dementia caregiver resources such as a wealth of information about Alzheimer’s disease, vascular Dementia and other irreversible dementias. The Alzheimer’s Association offers dementia caregiver resources to professionals, patients and family caregivers, including a 24-hour helpline (800) 272-3900 that can be accessed throughout the United States. Both caregivers of persons with dementia as well as professionals find this helpline invaluable. The Alzheimer’s Association’s national office is located in Chicago.
www.lbda.org offers dementia caregiver resources such as educational conferences, webinars and support groups for those dealing with a diagnosis of Lewy Body Dementia. The Lewy Body Dementia Association’s home office is based in Georgia.
www.theaftd.org Based in the Philadelphia area, The Association for Frontotemporal Degeneration offers dementia caregiver resources and information about Frontotemporal Dementia, Pick’s Disease and other Frontotemporal Degenerative conditions. Their dementia caregiver resources include educational conferences and support groups.
www.cjdfoundation.org offers dementia caregiver resources such as educational conferences and family support to patients with Creutzfeldt-Jakob Disease (CJD) and their families. The Creutzfeldt-Jakob Disease Foundation’s home office is located in Ohio.
www.hdsa.org Based out of New York, the Huntington’s Disease Society of America offers dementia caregiver resources such as support and education to patients and families impacted by Huntington’s Disease.
If you want simple, practical strategies on how to deal with the stress of caring for or supporting someone who has dementia, check out Jennifer FitzPatrick’s new book, Cruising Through Caregiving: Reducing The Stress of Caring For Your Loved One at www.cruisingthroughcaregiving.com.
Jennifer L. FitzPatrick – MSW, LCSW-C, CSP
The founder of Jenerations Health Education, Inc., Jennifer FitzPatrick has over 20 years’ experience in healthcare and gerontology. The author of Cruising Through Caregiving: Reducing The Stress of Caring For Your Loved One, she is also a gerontology instructor at Johns Hopkins University and an Education Consultant to the Alzheimer’s Association. She helps you reduce stress and increase productivity, morale and revenue. Jennifer and Cruising Through Caregiving have been featured in Forbes, U.S. News & World Report, The Huffington Post, Reader’s Digest, Univision and The Chicago Tribune. She has also appeared on ABC and Sirius XM.